Acknowledgements and References
10 Acknowledgements
The trustees would like to express their thanks to the following:Lucy Gent for reading the final draft and giving many valuable comments on style and presentation generally.
Inge Heinrich for using her experience in medical statistics to give advice especially on the presentation of the numerical data in sections 6, 7 and 8 above.
Susan Gwynne-Timothy for her extensive work on the database, helping with many tedious tasks involved in refining its construction, entering data and assisting with some of the analysis.
Adam Toth, a systems analyst, who has developed the design of the database so as to ensure a smoother flow of information to and from it, and to simplify and accelerate data analysis procedures. Such design work has meant delays at this stage, but its value in ensuring the smoother running of the project in future will be immeasurable.
The many fund-raisers, a large number of whom are participants, who have made it possible for the project to go forward. This has included taking our preliminary findings to the First International Congress on CFS and Related Disorders in Brussels in Novermber 1995.
11 References and Relevant Reading
Acheson, E D (1959) The clinical syndrome variously called benign myalgic encephalomyelitis, Iceland disease, and epidemic neuromyasthenia. American Journal of Medicine, 26: 569-595Arnold, D I, Bore, P J, Radda, G K, Styles, P & Taylor, D J(1984) Excessive intercellular acidosis of skeletal muscle on exercise in a patient with a post viral fatigue syndrome Lancet 1: 1367-1369
Behan P O, Behan W M H & Bell E J.(1985) The Postviral Fatigue Syndrome - an analysis of the findings in 50 cases. Journal of Infection 10: 211-222
Behan P O, Behan W M H (1988) Post-viral fatigue syndrome CRC Critical Reviews in Neurology Vol 4 Issue 2: 157-178
Bell, David (1991) The Disease of a Thousand Names. Pollard New York
David AS, Wessely S, Pelosi AJ. (1988) Postviral fatigue syndrome: time for a new approach. British Medical Journal 296: 696-699
Dowsett E G, Ramsay A M, et al (1990) Myalgic Encephalomyelitis - a persistent viral infection ? Postgraduate Medical Journal 66, 526-530
Hinds, G M E & McCluskey D R (1993) A retrospective study of the chronic fatigue syndrome. Proceedings of the Royal College of Physicians, Edinburgh 23, 10-14
Gibbons, R, Macintyre, A, Richards, C(1996), Letter British Medical Journal 312, 1096,7:
Grufferman, S Epidemic and immunologic Findings in Clusters of Chronic Fatigue Syndrome in Hyde B, ed (1992) The Clinical and Scientific Basis of Myalgic Encephalomyelitis Chronic Fatigue Syndrome. Nightingale Research Foundation, Canada pp. 189-195
Hyde B, ed (1992) The Clinical and Scientific Basis of Myalgic Encephalomyelitis Chronic Fatigue Syndrome. Nightingale Research Foundation, Canada
Kendell, RE (1967) The psychiatric sequelae of Benign Myalgic Encephalomyelitis. British Journal of Psychiatry, 113, 833-840 Lloyd A R et al (1989) Immunological Abnormalities in Chronic Fatigue Syndrome. Medical Journal of Australia 151: 122-124
McEvedy , C P & Beard, A W (1970) Royal Free epidemic of 1955: a reconsideration. British Medical Journal 1, 7-11
McEvedy , C P & Beard, A W (1970) Concepts of benign myalgic encephalomyelitis. British Medical Journal 1, 11-15
Macintyre A. (1992) ME: How to Live with It. London, Thorsons
Martin J, Meltzer H & Ellioit, D, Office of Population Censuses and Surveys, Social Survey Division (1988) OPCS surveys of disability in great Britain, Report 1: The Prevalence of Disability Among Adults. London, HMSO
The National Task Force Report on Chronic Fatigue Syndrome (CFS) Post Viral Fatigue Syndrome (PVFS) Myalgic Encephalomyelitis (ME). (1994) Bristol, Westcare
Ramsay, A M (1988) Myalgic Encephalomyelitis and Post viral fatigue States: The Saga of the Royal Free Disease. London, Gower Medical
Richards, C (1991) Medical Discourse: A suitable case for treatment Perspectives The magazine of the MEAssociation
Sharpe M, Hawton K, Simkin S Surawy C, Hackmann A, Klimes I, Peto T, Warrell D, Seagroatt V. (1996) Cognitive behaviour therapy for the chronic fatigue syndrome: a randomised controlled trial. British Medical Journal 312:22-6
Shepherd C (1992) Living with ME. London, Cedar
Wilson A, Hickie I, et al (1994) Longitudinal study of outcome of CFS. BMJ 308, 756-759
Wookey C (1988) Myalgic Encephalomyelitis: Post-Viral Fatigue Syndrome and How Top Cope With It. London, Chapman and Hall
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