THE STORY FROM BELOW
Part 1
First Year Report on the Disease Characteristics of 169 Patients with Chronic M.E.
Responsibility for the Report lies entirely with the trustees. We are grateful to our advisors for the valuable contributions they have made to our thinking as we have built up the project, but they are in no way responsible for the content, format or underlying philosophy of this report.Participants
The production of this report would not have been possible without the willing co-operation of all those who, often while in great pain, and at great cost to themselves, have provided, and continue to provide, the database with so much information in their completed questionnaires. The trustees wish to express their thanks to them and to remind them that, without their continued supply of information in the annual update questionnaires, the all-important monitoring process will not be able to proceed. May 1996
Contents
- CHROME Information
- The ME Debate
- Setting Up the Project
- Setting up the Survey
- Population Characteristics
- Work and Leisure and the Effects of Illness
- Disability Levels
- Motor/Sensory Disturbances
- Treatment Offered and Its Effects
- Conclusions
- Acknowledgements
- References
- Appendix I - Medical Discourse: A suitable case for treatment?
- Appendix II - BMJ Letter 27 April 1996
- Progress report - Spring 1997